Health & Safety
Matters
Living a healthy and safe life is important, especially for individuals diagnosed with Parkinson’s disease. Learning about safe and healthy living strategies can minimize risks and keep you healthy and mobile in the future.
Transportation
Transportation can be a significant challenge for individuals with Parkinson’s diease due to symptoms like tremors, stiffness, slow movements, and cognitive changes. The tips can help individuals with Parkinson’s disease navigate transportation more easily and safely, allowing for greater independence and mobility. It’s important to regularly assess transportation needs with your healthcare professionals as symptoms change over time.
Driving Safety
> Regular Assessments - As Parkinson’s progresses, it’s important to regularly assess driving ability. Consult with a healthcare provider about symptoms like slow reaction times, stiffness, and tremors that may impact driving.
> Limitations on Driving - Consider limiting driving to shorter, familiar routes. Avoid driving in heavy traffic, at night, or during bad weather if these conditions feel overwhelming or unsafe.
> Stay Focused - Avoid multi-tasking while driving, such as adjusting the radio or talking on the phone. Focus on the road to minimize distractions.
> Vehicle Modifications - In some cases, modifying the vehicle with hand controls or assistive devices can help accommodate physical limitations.
> Discontinue Driving When Necessary - As symptoms worsen, it may become unsafe to drive. Plan for the future by exploring alternative transportation options in advance of needing them.
Use of Public Transportation
> Plan Ahead - Check bus or train schedules in advance to allow for extra time to get to and from stops or stations. Consider using a mobility aid (such as a walker) if walking long distances is challenging.
> Accessible Options - Most public transportation systems offer accessible options for people with disabilities. Look for buses with ramps, low floors, or paratransit services.
> Safe Seating - Sit as close to the front of the bus or train as possible to avoid walking through a moving vehicle. Some systems have designated seating for those with disabilities, which is easier to access.
> Travel During Off-Peak Hours - To avoid crowded conditions, travel during off-peak hours when there is more room to move, sit, and navigate safely.
Ride-Sharing & Taxi Services
> Use Ride-Sharing Apps (Uber, Lyft) - Ride-sharing services can be a convenient alternative if driving is no longer safe. These services often allow you to be picked up from your door and dropped off at your destination without the stress of navigating public transportation.
> Accessible Ride Options - Some ride-sharing and taxi companies offer accessible vehicles for those using wheelchairs or other mobility aids. Look for services with special accommodations.
> Request Assistance - Don’t hesitate to ask the driver for help getting in or out of the car if needed.
Paratransit Services
> Door to Door Service - Paratransit services are offered by many public transportation systems for individuals with disabilities who are unable to use regular public transit. These services typically provide door-to-door transportation, which can be scheduled in advance.
> Plan in Advance - Paratransit rides often require advance booking, so plan your trips ahead of time, and be aware that rides may take longer since they often serve multiple passengers at once.
Assistive Devices for Walking
> Use Mobility Aids - Walking aids such as canes, walkers, or scooters can assist with balance and mobility when moving to and from transportation options. Make sure these aids are easy to transport and use.
> Foldable Scooters or Wheelchairs - If walking is difficult, consider using a foldable scooter or wheelchair for getting around. These can be easily transported in cars or public transportation.
Flying with Parkinsons
> Request Assistance at the Airport - Most airlines provide assistance services for people with disabilities, such as help with boarding, deplaning, and moving through the airport. Request this service when booking your flight.
> Accessible Seating - Request accessible seating, such as bulkhead seats or aisle seats, for easier access and extra legroom.
> Medication Management - Keep your medications with you in your carry-on bag, and set reminders to take them on time, especially when traveling across time zones.
Involve Family or Care Partners
> Companion Assistance - If possible, travel with a family member, friend, or caregiver who can help with navigation, boarding, and managing any symptoms that arise during travel.
> Shared Driving Duties - If driving, share driving responsibilities with a caregiver or companion, especially on longer trips or if symptoms worsen during the journey.
Plan for Rest Breaks
> Frequent Stops - When driving long distances, plan frequent rest breaks to stretch, move, and avoid stiffness or fatigue.
> Avoid Fatigue - Parkinson’s symptoms can be exacerbated by fatigue, so avoid overextending yourself. Plan travel during the part of the day when energy levels are highest, and allow extra time for rest if needed.
Emergency Preparedness
> Keep a Phone Accessible - Always have a phone within reach in case of an emergency. Use wearable medical alert devices if necessary.
> Carry Emergency Contact Info - Always carry a card with important medical information, emergency contacts, and details about your condition. This can help others assist you in case of an emergency during travel.
> Use Medical Alert Devices - Wear a medical alert bracelet or device that can inform others of your condition in case of an emergency, particularly if traveling alone.
Engage Care Partners or Support
> Account for Freezing Episodes - If you experience freezing of gait, allow extra time for movement and travel. For example, during these episodes, focus on rhythmic movements like marching or shifting weight to regain mobility.
> Avoid Rushing or Stress - Try to avoid rushing, as stress can worsen symptoms. Give yourself plenty of time for all travel-related activities.